My 2 Year Anniversary of Being Chronically Ill

My journey officially began 2 years ago. Wow, it’s truly insane to think I’ve been chronically ill for that long. It’s strange to think after countless amounts of tests, Doctors appointments, and trials of treatment; I have been going through this for 2 years. I have experienced more in 2 years, than some people go through in a lifetime. The word “chronic illness” seems so vague, but has been completely life-changing for me.

I have so far been diagnosed with lupus, fibromyalgia, POTS, EDS, celiacs disease, and CFS. Unfortunately, because of the condition I was/am in, 2 years ago I had to temporarily put college, my job, and my hobbies on hold. I was lost, and in an extremely dark place. I used to be a very independent person, and I had to learn how to let go of that control, so I could be taken care of. I had/have to miss out on big events and plans, because I didn’t feel good.

I learned who was actually there for me. During hard times, you see that people you thought would always be there for you may not be, and people you never expected to be there for you, are there for you every step of the way. You create very close bonds during hard times, and distance yourself from those you feel almost betrayed by.

Being ill really opened my eyes. I can discuss all of the negatives my illnesses have brought to my life, but there are some positives. My caregivers and others who have seen me at my absolute worst, and never once left my side- I will forever treasure you, and have a special place for you in my heart. Words can’t even express how thankful I am for you. From the bottom of my heart, thank you.

I was introduced into the writing world almost a year ago. Wow, the impact writing, sharing my story, and getting to know everyone in the blogging community has made on my life, has been certainly special. Getting to know the chronic illness bloggers, and my new blogging friends has been truly amazing.

I now, see the world differently. I know the world is not always a safe and happy place, and that’s why I now strive to make a difference in this world. My mindset has completely changed. I’ve always been an optimist person, but with being ill, I’ve learned being negative because I’m hurting will not help anyone else. It takes more energy to be negative and mean, than it is to be positive. I don’t allow myself to go to a dark place. It’s not always easy to find the good in every situation, but it’s worth it. The mindset you create by being more positive, is a truly freeing feeling.

My illness has taught me that no matter what I go through in life, I can overcome it, to always stay strong, and positive while going though it. Since becoming ill, all I want to do is help others. I want to be the voice for others who don’t have one. I also know how precious life is, before becoming ill, I thought I was invincible. I now live each day like it’s my last, and I don’t take a single second for granted

My life has truly changed within these 2 years. I can honestly say, even though my body and pain is a struggle, my mindset, the bonds I have created with my loved ones, and starting my blog is something I am forever grateful for. I will never give up, I will always stay strong, and I will overcome this. Because I am a warrior, and you are too. β™‘

49 thoughts on “My 2 Year Anniversary of Being Chronically Ill”

  1. Hi McKenzie. I couldn’t agree with you more about looking at the positives rather than the negatives. My life is radically changed forever as someone who is paralyzed from the shoulders down; and yet, so much good has come out of it. I can relate to everything you say and so appreciate your optimistic attitude. I look forward to reading more of your blogs.

    1. I’m so sorry to hear about that, but you are a strong girl and your optimism is amazing! Thank you so much for your kind words! Thank you! πŸ’›

  2. You are definitely a warrior. Keep fighting and we will continue battling this together. I’m very proud of you.

  3. Bingo. It is (relatively) easy to be positive the first day. But the second, the tenth…two months, a year later? That is when maintaining positivity becomes absolutely heroic.

    Rock on.

  4. That’s not an anniversary that you want to celebrate with cake and drinks. I’m so sorry.

    Do you mind me asking how you were diagnosed with lupus? I just wonder about diagnosis without the facial redness/rash and whether blood tests pick it up adequately.

    You are amazing in seeking out the positives too, which can be so hard to do. You are most certainly stronger than you may think, you make a difference, you are awesome!

    PS. You totally rock the hospital bed in that photo! And you’re doing a fantastic job with your blog, sharing invaluable experience and showing what it’s truly like with chronic illness. xx

    1. I actually tested negative for the lupus test several times! But I have all of the symptoms like the butterfly rash, low white blood cell count, joint pain, fever.. etc. So they tried an immunosuppressent medicine and it’s helped so they said yup I think you do have lupus.
      Aww thank you! You’re the best! I always appreciate your kind words and encouraging comments! πŸ’›

    2. I don’t know how they diagnosed Mackenzie specifically, but there are blood tests that will help diagnose Lupus. Some of them are rule-out tests or non-specific tests (e.g. for inflammation, for anemia, etc) to make sure it’s not something else that can cause the same symptoms, but the main test for Lupus is something called ANA which stands for Anti-Nuclear Antibody. Lupus is an auto-immune disorder, so when the symptoms correlate with a positive ANA (detects antibodies made against your own cells), it’s relatively easy to diagnose it. Also if fluid is drawn off a swollen and inflamed joint, such as knee or elbow, there’s a possibility of seeing LE (Lupus Erythematosus) cells, which are only present in patients with Lupus.

  5. I love your spirit – you are a wonderful role model πŸ™‚ I agree that the blogging community is amazing!

  6. Hope you’re having a good day! Love your post…. “Spread love. Stay strong. Remain positive”.
    Thanks for sharing! πŸ’™

  7. I’ve known you for some time and it is hard for us who love you to see you go through this. It’s so nice to see that you haven’t lost your core soul. I know its been an extreme struggle and to find that positive for yourself to share with others is who you really are. You’ve got this Kenzie and will continue on your journey to become stronger each and every day both physically and mentally because that’s who you are. God will help you to help others in whatever capacity is laid out in front of you. Hugs my little friend!!πŸ’™πŸ’šπŸ’›

  8. You’re an inspiration to those having to deal with chronic illness and painβ€”keep up the good work of informing and encouraging! πŸ˜‰

  9. You’re an inspiration. I cannot imagine having to deal with everything you have had to deal will. Keep strong and thanks for sharing your story!

  10. Love this post so much πŸ’šπŸ’™ All the way behind you into your third year 😊 I begun my third year in April this year too.
    Like the words “because it’s worth it. It really is & that’s why I tend to become frustrated when people preach harshly about positivity when my life revolves around it lol.

    Much peace & blessings to you Mackenzie

  11. Hi McKenzie,
    Thanks always for sharing your positivity, strength, and perseverance. You are truly a warrior and inspire us all. I know what you mean when you think of how much time has passed since you’ve been diagnosed. My daughter was diagnosed with PSC six years ago, and that day 10/4/12 will be vivid in my mind forever. But her attitude runs parallel with yours, which we’re grateful for, and she in turn has taught us to do the same. Although, it’s difficult for parents to see their child ill and struggling. Moving forward though…We just pray that when she’s in dire need, there will be a liver available. Take care of yourself and thank you.

    1. Hi Lauren,
      Thank you so much. That truly touches my heart. Your kind comment means so much to me. I am so sorry to hear about you and your daughters trials but it sounds like she has an amazing support system and a great mindset. Stay strong and keep moving forward, peace and love sent your way! Thank you again, best wishes!!πŸ’œ

  12. This post is POWER!! I, too, suffer with chronic illness. 8 years ago, I became disabled. I understand the temptation to shut down and be bitter. I lived it! But after “getting my mind right” and finding purpose, I have grown so much. God knows that I get tired of being sick but I’m living. Thanks for this post.

  13. You’re a beautiful Goddess Warrior and such a beam of light and inspiration! Thank You for all You do!!! β€οΈβ˜€οΈπŸ˜Š

  14. You’re an incredible human being. I admire and respect your courage and heart! Thank you for finding my page reading yours gives me so much power to deal with my own illness and the negativity that’s always looking for a gap to steal my joy… Thank you!

  15. Thanks for sharing. Just yesterday night we were at some friend’s house and as we were about to leave, the phone rang, their 12-year-old nephew is in hospital with numerous cancers all over the place – so immediately everyone was sad. I wish more people read your story and realise, we cannot afford to be negative, whatever we vibrate inside, we create in the physical world.

    Do you believe in prayer?
    For me prayer is like giving the allowance for something to happen, we can’t even think would be possible. Or in other words, give up being loyal to the limits in your own thinking.

    All the best and keep rocking!

    1. Thank you for sharing your experiences. Wow, thank you so much! That means a lot to me!
      I do believe in prayer and I pray a lot. I completely agree with you! Thank you!!!

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